Record Linkage and Privacy: Issues in Creating New Federal Research and Statistical InformationDIANE Publishing, 2001 |
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Add Health administrative data Archive Building a Privacy Census Bureau chapter code numbers conducted consent to linkage contextual data Data Access Data Privacy Data stewardship strategies data subjects database developed disclosure risk discussed Duncan Enhancing Data Stewardship example existing records federal agencies Federal Committee federal record individuals informed consent institutional review boards Introduction and Background involved Jabine Linkage and Privacy linkage projects linked data linked datasets LSOA masked data sharing matching Medicare microdata multiperson National NCHS obtained organizational culture Ottawa Sun person-by-context linkages person-by-person linkage personal identifiers personal privacy policies Privacy Act privacy issues Privacy Protection Toolbox record linkage reidentification risks relevant require safer data safer settings sample surveys Scheuren security of linked sets of existing Social Security Administration specific statistical agencies statistical and research Strategies for Enhancing survey data survey-archive transfer U.S. Census Bureau U.S. General Accounting Washington
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Page 128 - ... (4) to the Bureau of the Census for purposes of planning or carrying out a census or survey or related activity pursuant to the provisions of title 13; (5) to a recipient who has provided the agency with advance adequate written assurance that the record will be used solely as a statistical research or reporting record, and the record is to be transferred in a form that is not individually identifiable...
Page 134 - IRB finds and documents that: (1) the research involves no more than minimal risk to the subjects; (2) the waiver or alteration will not adversely affect the rights and welfare of the subjects; (3) the research could not practicably be carried out without the waiver or alteration; and (4) whenever appropriate, the subjects will be provided with additional pertinent information after participation.
Page 20 - Such confidentiality statutes now apply only to the Bureau of the Census and the National Center for Health Statistics.
Page 128 - ... (1) to those officers and employees of the agency which maintains the record who have a need for the record in the performance of their duties...
Page 22 - ... matching program"— (A) means any computerized comparison of — (i) two or more automated systems of records or a system of records with non-Federal records for the purpose of— (I) establishing or verifying the eligibility of, or continuing compliance with statutory and regulatory requirements by, applicants for, recipients or beneficiaries of, participants in, or providers of services with respect to, cash or in-kind assistance or payments under Federal benefit programs...
Page 127 - The term system of records means a group of records under the control of an agency from which information is retrieved by the name of the individual or by some identifying number, symbol, or other identifying particular assigned to the individual. (h) The term statistical record means a record in a system of records...
Page 130 - ... records or information compiled for law enforcement purposes, but only to the extent that the production of such law enforcement records or information (A) could reasonably be expected to interfere with enforcement proceedings...
Page 129 - States or other individuals pursuant to section 3056 of title 18 ; (4) required by statute to be maintained and used solely as statistical records; (5) investigatory material compiled solely for the purpose of determining suitability, eligibility, or qualifications for Federal civilian employment, military service, Federal contracts, or access to classified information, but only to the extent that...
Page 129 - ... (C) the categories of records maintained in the system ; (D) each routine use of the records contained in the system, including the categories of users and the purpose of such use; (E...
Page 133 - Census, and (B) such return information reflected on returns of corporations to officers and employees of the Bureau of Economic Analysis, as the Secretary may prescribe by regulation for the purpose of, but only to the extent necessary in, the structuring of censuses and national economic accounts and conducting related statistical activities authorized by law.